Alzheimer’s and Kindness

Today, when I went to visit the nursing home where both my parents currently live, I discovered my mother in the doorway of her bathroom entangled in her nightgown. She was naked from the waist up and unable to find the appropriate holes for her head and arms.

“Help me,” she said but I don’t think she had any idea she was speaking to her son.

I’m not used to idea of finding my mother half-naked and confused, of having to help her with this simplest of tasks. Normally a nurse would magically appear to take over but today the hall is empty. I managed to straighten out the nightgown, to get her arms and head into the right places.

“Take off my pants,” she said and went and sat on the edge of her bed. I pulled of her shoes and slacks and pulled down her nightgown.

My father had appeared from his room. “This is crazy,” he said and turned and left. There are no double rooms so my parents, although t hey are married sixty-eight years, are living separately. Few couples come here. Nearly all the residents are women, widows who sit in lines close to the exit, wearing bracelets that lock the doors automatically if they try to leave.

My mother tried to pull back her blanket but couldn’t for along with Alzheimer’s she has macular degeneration and, therefore, only peripheral vision. I pulled back the blanket, helped her into bed where she curled up into a fetal position. I covered her and, although it was only three thirty in the afternoon, wished her good night.

This, for the young readers who believe no such fate could come their way, was a woman who was a credit union manager for twenty-two years, who sold insurance, who regularly braved northern winter roads to bring supplies to my father at his commercial fish camp.

My mother loves this nursing home, or loved it, when she was still aware. She wanted to come here and quickly joined in the activities. She looked forward to volunteering for folding face cloths. She enjoyed Friday night happy hours, the church services, the mind games, the physical exercises, the company of other women.

My father, on the other hand, hates it here. He came unwillingly, driven in by his inability to live alone or with anyone else. Before he came here his paranoid dementia brought him to my home half a continent away in Victoria, then after he became convinced that I had stolen his morphine pills, his money, was trying to poison him, had listening devices in all the walls, his paranoia drove him away. Unable to live on his own, he raged against having to move into a care facility. He refuses to participate. He goes into rants over the food. He particularly despises pasta.

He has good days and bad days. On the good days I have my father back, not the charming, amusing man most people, including me, remember but, at least a person who is rational and can talk knowledgeably about his great passion, the penny stock market. Most of the time he is angry. The morphine he has to take to control the pain from a shattered vertebra increases the paranoia but he can’t get by without it. It’s a fine balance. Enough drugs to control the pain but not too much that would mean he sleeps all the time.

There is a resident here who just celebrated his one hundred and fifth birthday. “I don’t want to be like that,” my father says. He is agitated. He is lying on his bed. He swings his legs over the side, picks up his cane, starts to stand up, lies down again. He repeats this motion over and over again, only occasionally standing up and walking as far as the door of his room, then back. “I want to die.”

“I want to die. I want to die.” I hear this refrain over and over again but he also wants to see the doctor every Friday when the doctor comes to visit.

Shortly after I arrived at the beginning of June, my father had a fall. The nursing home called and I immediately went there. There’d been a bed check at five a.m. At six forty-five he’d rung the emergency bell.

“I don’t know what happened,” he said. He’s a mess. His face is cut from his right eye to well down his cheek. His arm is broken. His hand is unrecognizable. It is a swollen lump like half a black cantelope. “I woke up and I was lying on the floor. I kept trying to get up and kept slipping. I thought it was water.” It wasn’t. He was slipping in his own blood.

He can stand more pain than any other person I’ve known. He once was on the road to his fish camp. He heard a car coming very fast on the gravel. He ran to the front of his car but before he could get any further a car came around the curve and rammed into the rear of his car, knocking him onto his back and driving his car over him. It ran up one leg and ended with a front tire on his chest. The driver and passenger thought he was dead. When they saw he wasn’t, they lifted the front end of the car off him. He

was paralyzed and couldn’t move. They put the car down, the driver lifted the front end and the passenger pulled him free. By the time help arrived, my father was sitting in his own vehicle and refused to go to the hospital. He did, however, go to the hospital three days later because of the pain. His leg looked like an overripe banana and had a crack in the bone.

No sissy, this guy.

They bandage his face and put a tensor bandage on his arm. He doesn’t complain. However, in the days to come, he is convinced that his injuries are the result of a beating. “I couldn’t have got hurt like that from falling out of bed,” he says, completely forgetting that he was found at the entrance to the washroom. The most likely cause was a TIA, a small stroke that often presages a larger one.

I come every day. I bring mr. big chocolate bars, jelly beans, licorice all sorts, bags of bulk cookies from SuperA. I’d bring gold and silver if it would help.

I nearly always bring Chico Bandito, my chihauhau because Chico loves to be patted and praised. For many here, a chance to pat a dog is the only opportunity to express physical affection. I’ve learned to say hello to everyone because while my parents have many visitors, some residents have none.

This morning, I picked up my aunt Florence and we drove to Selkirk to Gilbart’s funeral home. My parents want to be cremated. My mother wants her ashes buried in her mother’s grave. My father wants his ashes buried in my mother’s father’s grave. They’ve left clear instructions in their wills.

I’m a bit hesitant about preplanning. I don’t want to feel like I’m rushing my parents toward death. But we plan many things– marriages, pregnancies, christenings, educations–why not this? With the undertaker, I discuss the details of picking up bodies, of cremation,

of services then, with my aunt’s help, pick out two urns. A flowered one for my mother because the pattern reminds me of one of her favorite dresses. Seagulls on a blue background for my father because on his boat on Lake Winnipeg with blue sky above and blue water beneath, he always was happy. I think everything is done when I make out a cheque but I’ve forgotten my parents’ social insurance numbers. I promise to telephone with them as soon as I get home.

Later, when I’m back at the nursing home, I see a nurse bring my father his pills and, sitting

beside him on the bed while he takes them, rub his back and quietly tell him he’s doing just fine. My mother, awake for awhile, has had a good day because she participated in the face cloth folding where she can visit and still feel useful.

This is a place filled with tragedy but tragedy softened by kindness and compassion and, I realize, that those are two of the many things this place has taught me.

To change the world is impossible but to say hello, to lift a chihauhau into someone’s lap,

to accept my mother’s nakedness and help her dress, to hate my father’s paranoia but not my father, to take on the role of decision maker, these I can do to make the world a better place..

First published in Logberg-Heimskringla

Canada’s oldest ethnic newspaper

100-283 Portage Ave., Winnipeg, Manitoba R3B2B5

lh@lh-inc.ca